Lupus erythematosus - living with SLE

There is often a vicious circle in lupus: joint pain and tiredness prevent those affected from moving - which in turn leads to weight gain, loss of strength and fitness. Therefore, it is important that lupus sufferers move sufficiently and regularly (in everyday life, sports, physiotherapy). This is the only way to avoid or postpone the after-effects of lupus disease.

Psychological burden of lupus

Not to be underestimated are the psychological factors: Fears and stress can directly and indirectly influence the course of the disease; conversely, it is a great challenge for sufferers and often very difficult to accept the diagnosis of lupus with all its limitations.

Therefore, psychological measures such as behavioral therapy, biofeedback and autogenic training can affect the quality of life of lupus sufferers noticeably positive. Self-help groups can also help manage the lupus disease.

Lupus: diet and SLE

There are few meaningful studies on the influence of nutrition on the course of the disease. However, there are always cases where a diet change has improved lupus symptoms. In particular, a wholefood diet with no dairy and egg products and with low and low-fat animal products is described as positive in the case of lupus disease. On the other hand, it is not recommended to use strict diets or crash treatments.

Lupus: pill, pregnancy and sunlight

The use of the pill is rather discouraged as hormones can promote a lupus boost. If pregnancy is planned, the person concerned should discuss this with their doctor. Pregnancy with lupus is possible in many cases today, but it means an increased risk for mother and child. It must therefore be carefully planned and monitored. In addition, drugs must be adjusted.

Since UV light in many cases favors lupus relapses, sunbathing is more likely to be avoided in the case of lupus disease. It is important in any case, sunscreen with high SPF to use. Medication that can cause SLE must be discontinued or replaced by other therapies in consultation with the physician.

Prognosis with lupus

A lupus erythematosus is not curable. This means that the person concerned has to come to terms with his illness. This is all the more difficult as the course of a lupus is unpredictable. One possible consolation is that today, with early and consistent lupus therapy, the prognosis is many times better than before.

Most commonly, those affected die from severe infections (due to immune-suppressive therapy). The more pronounced and diverse the lupus symptoms are at the beginning of the disease and the more organs (especially the kidney and the central nervous system) are affected, the more critical the prognosis is.

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